Discussing sudden unexpected death in epilepsy: Are we empowering our patients? A questionnaire survey
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منابع مشابه
Discussing sudden unexpected death in epilepsy: Are we empowering our patients? A questionnaire survey
OBJECTIVE To examine patient knowledge about sudden unexpected death in epilepsy (SUDEP) compared to other risks in epilepsy. To explore patients' experiences surrounding SUDEP disclosure and opinions on how information should be delivered. DESIGN A cross-sectional questionnaire. SETTING Royal Free Hospital, London outpatient epilepsy clinics. PARTICIPANTS New and follow-up patients atten...
متن کاملExplaining the unexplained; expecting the unexpected: where are we with sudden unexpected death in epilepsy?
Sudden death is over 20 times more frequent in people with epilepsy than the general population. The literature on clinical risk factors is now able to define individuals at the highest risk. Despite these advances in our understanding of risk, the mechanism of sudden unexpected death in epilepsy remains elusive. While it is unlikely that a single mechanism will be found to explain all deaths, ...
متن کاملDiscussing sudden unexpected death in epilepsy (SUDEP) with patients: practices of health-care providers.
There is a lack of consensus regarding how health-care providers should address SUDEP with patients. The purpose of this study was to describe various health-care providers' practices regarding discussion of SUDEP with patients. Separate focus groups were conducted with epileptologists, neurologists, and advanced practice nurses. Across all disciplines, reasons for discussing SUDEP included Pra...
متن کاملSudden unexpected death in epilepsy
SUDEP is defined as the sudden, unexpected, witnessed or unwitnessed, non-traumatic, and non-drowning death in patients with epilepsy with or without evidence for a seizure, and excluding documented status epilepticus, in which postmortem examination does not reveal a structural or toxicological cause for death1. Where autopsy is not performed, and for the purpose of epidemiological studies, su...
متن کاملSudden unexpected death in epilepsy
People with epilepsy have increased risk of premature death, and their life expectancy may reduce by 2-10 yr. Population- and hospital-based studies have shown that the excess mortality in epilepsy is not entirely explained by deaths directly attributable to epilepsy such as accidents and drowning during a seizure. It is also significantly contributed by deaths from other causes such as cardiac...
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ژورنال
عنوان ژورنال: JRSM Open
سال: 2016
ISSN: 2054-2704,2054-2704
DOI: 10.1177/2054270416654358